6 weeks down. I can’t tell if this has been the longest or the quickest 6 weeks of my life but has certainly been the hardest.
A lot of goals have been ticked off along the way, from getting in and out of bed without support to even showering by myself, changing myself and basically just in general self care. But most importantly at this time (05/07/19) my leg has grown 3.5cm which makes it all worth it. Just seeing myself look some-what normal again makes me excited for the future.
(Picture 1- taken day before surgery)
(Picture 2- taken 31 days after surgery)
Since my last post I’ve started physio on my leg. Since I’ve been like this pretty much from the age of 13 my body has adapted itself to make it as comfy as possible for me to live day to day. Therefore, as I’m now getting better I’m having to also teach my body how to get better. My entire lower body doesn’t sit in line anymore meaning when I get back to walking I’ll still struggle and possibly struggle more. Everyday I’m teaching myself to sit and stand straight with my legs and hips sat in the correct positions. This is mentally one of the hardest things I have to do and will take time.
I’ve also lost around 15 degrees in my knee flexion. And cannot fully extend either. Again this is just continuous physio throughout the day. It’s not something I go to once a week, give it a crack and say ok see you next week. It’s 24/7 and a fucking nightmare if I’m honest. But I’m getting there, I’m seeing improvements everyday and I want to show myself that having these set backs won’t effect my outcome.
I’ve got my next hospital appointment this week. There I’ll see exactly how much I’ve grown and what I’ve got left. Also a full update on the leg and how it’s healing a long side hopefully driving, activities and getting off my crutches.
See you in 2 weeks
Churs, Chae x
My Limb Lengthening Journey 